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I am a semi - retired professional individual who has reinvented herself over the last 3 years. I now have the time that allows me to be more focused on what is most important to me. My passion for learning, teaching children in a fun way and most importantly, my son’s health and the need to make our voices heard advocating Lyme Disease education, awareness, testing and research. It’s important we persist in doing whatever is necessary. As a family, Darren and I have spent over 20 years trying to find a doctor with the elusive cure for Lyme Disease to no avail. In order to change this, it will require community conversations about this debilitating disease throughout the state of CT and beyond. We need to educate our state legislators on the emotional, physical and personal medical costs being dealt with by the individuals and their families. We need to have the state set aside much needed funds for research, qualitative and quantitative testing, and determine how the state can work more closely with the health insurance companies to find some relief as to the thousands of dollars being spent by these families that are facing this Lyme Disease epidemic. Part of our role is to help parents understand how to be aware of what to look for where their children return from playing outside or are not feeling well. It means we need to be diligent in being sure doctors are following the appropriate protocol as well.
I have been fortunate to find Board, Chair people and volunteers that share a vision to lend there voices and time to a cause that previously did not look at the “human side” of this debilitating illness. To me there is now a sense of, with help from others, WE CAN MAKE A DIFFERENCE! I’m excited about who we are and where we are going! Please join us in this cause.
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